When Your MS Care Providers Retire

I was diagnosed with multiple sclerosis (MS) in April 2001. I had been living with ignored, explained away, and misdiagnosed symptoms for at least 15 years prior to that. I was 35 years old when I heard the words, “You have MS.”

In some ways, that moment feels like it happened only yesterday, and in other ways, it feels like forever ago. But it doesn’t feel like 21 years ago.

My initial diagnosis was suspected by my primary care doctor, alluded to by the radiologist who did my first MRI, and confirmed by a local neurologist who referred me to an MS-specializing neurologist at one of several MS centers in nearby Seattle.

The relationship with that center came with the added benefit of association with several other MS specialists — physiatrists, nurse practitioners, nurses, a rehabilitation psychotherapist, and eventually others, including physiotherapists, occupational therapists, art therapists, and the like.

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